"I love you and want for you all things that make you happiest; and I guess you, not I, are the one who knows best what those things are."

Wednesday, August 28, 2013

A Long Checklist

Charlie is still working at perfecting his bottle feeding. He has mastered the "suck, swallow, breathe" aspect but he wears out quickly. He is currently taking between 50-60 mL per feeding but his caloric needs are closer to 75-85 mL per feed. He's got to prove that he can handle the feedings and gain weight in order to be discharged. On that note, the OT said tomorrow mama can try to put Charlie ...to the breast for the first time to see if that entices him at all.

Charlie also successfully passed his hearing test in both ears, had an echocardiogram, and an EKG. Tonight he will attempt to pass his car seat challenge test, where he has to sit in his car seat for 30 minutes without having breathing, oxygen or heart problems (this insures he can tolerate the ride home).

Mom and dad checked CPR off the checklist (yay for already being certified!) and scheduled the arrival of oxygen tanks, an oximeter, an apnea monitor and home health care. Tomorrow will be a day of learning how to use all of the above.

Charlie is getting so close to coming home! There have been times in the past few months since his diagnosis that we wondered if we'd ever see this day...now we feel like we can see the light at the end of the tunnel.

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