John’s therapies have been moving along just swimmingly. At times I feel like our house is the Grand Central Station for all local therapists though. Not that I would change that – I want John to get whatever help he needs so that he can start school on an even keel with his classmates.
It’s been an uphill battle with his speech in particular, but he’s finely making some real progress. He can put together 2 words pretty consistently and periodically surprises us with a 3 or 4 word combination. Right now the biggest concern is that his errors seem very inconsistent. (He’ll get a word or sound right one second, then completely wrong the next). And unlike most almost-3-year-olds, he doesn’t have a “common” set of errors (i.e., always using an “f” sound in place of “tr”). These are all textbook apraxia issues and ones that we’re hopeful we can work through before Kindergarten.
As for OT – well, were keeping on. His grasping skills are still a little weak and his wrist tires pretty easily. But he has (finally!) mastered his pincer grasp and can button a shirt, unzip a jacket and tolerate a little bit of messy play. He seems to continue to struggle with loud environments, slimy or sticky anything, and some textures of food. He’s also gotten his net swing that fits in out kitchen doorway. He’s absolutely loving it! And as a bonus, it came with a trapeze bar that’s providing a totally different type of input for his shoulders, arms, wrists and hands!
As for his behavioral therapy – he’s definitely making progress. Two weeks ago he went for 15 minutes in the YMCA Child Care Room before he started crying. I know that’s not very long, but it’s progress. And no, he didn’t engage in play during those 15 minutes; he stood at the window, holding his timer and waiting for someone he knew to come back. However, since he normally starts crying the second we walk in there and they come get me from the gym about 7 minutes in because he’s on the verge of hyperventilating…15 minutes seems like eternity! Not to mention that I’ve enjoyed getting an hour to workout every other week while his BT works with him in the daycare
Development therapy is what it is. John really doesn’t have any delayed concept skills – but the DT has been working with John in many crossover areas (sensory play, social situations, encouraging speech).
And our newest development comes in PT. In the next few weeks we’ll have a PT evaluation for John. With his low muscle tone it’s been brought to our attention that his feet are really really flat and that it’s causing his ankles to turn inward a little. While he’s not behind on his gross motor skills because of this – the therapists feel it’s important enough to get checked out so that we don’t run into long term problems later in life. So we’ll see what the final evaluation says, but I’m guessing there are some arch supports in John’s near future.
In the meantime, we’re in the process of transitioning out of Early Intervention. At that point we’ll be handed over to the Collinsville School District Special Education Office. We’ve already got John set up for an Early Childhood Screening on Sept. 2nd. From there we’ll be able to gauge whether or not he’ll be eligible for services under their guidelines (which are, of course, different from the EI guidelines). Otherwise, we’ll be on our own to provide John with any therapies he needs through our health insurance and our pocketbook.
Here’s to hoping he qualifies for the services we know he needs!